We seem to have fallen into a bad habit of waiting several months between updates, and for that we apologize. Life just gets in the way – I think we’ve all been there. So settle in and grab a snack, because it’s gonna be a long one!
Happy New Year! We wanted to start off 2020 with an update on Samuel. You may remember that in September we went back to Johns Hopkins for Samuel’s second visit with his team of specialists. There were two main takeaways from that trip:
Last month we made our biannual trip to the Johns Hopkins Greenburg Center for Skeletal Dysplasia to see Sam’s specialists. The 7-hour drive was a lot easier this time because we didn’t have to stop quite as often