Last month we made our biannual trip to the Johns Hopkins Greenburg Center for Skeletal Dysplasia to see Sam’s specialists. The 7-hour drive was a lot easier this time because we didn’t have to stop quite as often

Summer has come and gone and here we are on the day before the start of fall and we’re finally posting an update…

It has been over a month since we wrote Sam’s last update after his visit at Johns Hopkins and we wanted to give a few details about what he’s been up to:

We returned from Baltimore Saturday evening. It was a long, exhausting trip in the car, and unfortunately the visits with the doctors did not provide us with good news for Sam’s condition.